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💔 𝗢𝗻𝗲 𝗬𝗲𝗮𝗿 𝗪𝗶𝘁𝗵𝗼𝘂𝘁 𝗘𝗺𝗺𝗮 𝗖𝗮𝗿𝗼𝗹𝗶𝗻𝗮
Saturday 1st MarMarch 23rd marks 𝗼𝗻𝗲 𝘆𝗲𝗮𝗿 since we lost Emma Carolina. She was 𝗷𝘂𝘀𝘁 𝘀𝗲𝘃𝗲𝗻 𝘆𝗲𝗮𝗿𝘀 𝗼𝗹𝗱 —a bright, joyful, fearless little girl. She lived 𝗻𝗶𝗻𝗲 𝘀𝗵𝗼𝗿𝘁 𝗺𝗼𝗻𝘁𝗵𝘀 after being diagnosed with 𝗗𝗜𝗣𝗚 (𝗗𝗶𝗳𝗳𝘂𝘀𝗲 𝗜𝗻𝘁𝗿𝗶𝗻𝘀𝗶𝗰 𝗣𝗼𝗻𝘁𝗶𝗻𝗲 𝗚𝗹𝗶𝗼𝗺𝗮), one of the most 𝗮𝗴𝗴𝗿𝗲𝘀𝘀𝗶𝘃𝗲 𝗮𝗻𝗱 𝗳𝗮𝘁𝗮𝗹 paediatric brain tumours.
📌 𝗗𝗜𝗣𝗚 𝗙𝗮𝗰𝘁𝘀:
- It primarily affects children 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝟰 𝗮𝗻𝗱 𝟭𝟭 𝘆𝗲𝗮𝗿𝘀 𝗼𝗹𝗱.
- The average survival time post-diagnosis is 𝗷𝘂𝘀𝘁 𝟵 𝗺𝗼𝗻𝘁𝗵𝘀.
- 𝗧𝗵𝗲𝗿𝗲 𝗶𝘀 𝗻𝗼 𝗰𝘂𝗿𝗲—𝗬𝗘𝗧.
I met Emma before she was even born. I helped prepare the 𝗯𝗮𝗯𝘆 𝘀𝗵𝗼𝘄𝗲𝗿 to welcome her into the world. I had the honour of being her 𝗴𝗼𝗱𝗺𝗼𝘁𝗵𝗲𝗿, a title I proudly shared with the many amazing aunties in her life.
Over the years, we created countless memories—𝗖𝗵𝗿𝗶𝘀𝘁𝗺𝗮𝘀𝗲𝘀 𝗳𝗶𝗹𝗹𝗲𝗱 𝘄𝗶𝘁𝗵 𝗹𝗮𝘂𝗴𝗵𝘁𝗲𝗿, 𝗛𝗮𝗹𝗹𝗼𝘄𝗲𝗲𝗻𝘀 𝗶𝗻 𝗰𝗼𝘀𝘁𝘂𝗺𝗲, 𝘀𝘂𝗺𝗺𝗲𝗿 𝘃𝗮𝗰𝗮𝘁𝗶𝗼𝗻𝘀 𝘁𝗵𝗮𝘁 𝗹𝗲𝗳𝘁 𝗺𝗲 𝗯𝗼𝘁𝗵 𝗲𝘅𝗵𝗮𝘂𝘀𝘁𝗲𝗱 𝗮𝗻𝗱 𝗼𝘃𝗲𝗿𝗳𝗹𝗼𝘄𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗷𝗼𝘆. My colleagues knew about Emma because, after visiting her and her family, I would always say, “I need a vacation after my vacation.”
💖 𝗪𝗶𝘁𝗵 𝗘𝗺𝗺𝗮, 𝗜 𝗯𝗲𝗰𝗮𝗺𝗲 𝗮 𝗰𝗵𝗶𝗹𝗱 𝗮𝗴𝗮𝗶𝗻.
We played dolls, made up stories, dressed up as princesses, baked sweet treats, took naps, jumped, danced, and watched our favourite Disney movies together. She awakened a light and energy in me like no other.
Then came the diagnosis.
🎭 𝗜 𝗯𝗲𝗰𝗮𝗺𝗲, 𝗮𝘀 𝗜 𝘄𝗼𝘂𝗹𝗱 𝗼𝗳𝘁𝗲𝗻 𝘁𝗲𝗹𝗹 𝗽𝗲𝗼𝗽𝗹𝗲, 𝗮 ‘𝘀𝗮𝗱 𝗳𝘂𝗻𝗰𝘁𝗶𝗼𝗻𝗶𝗻𝗴 𝗽𝗲𝗿𝘀𝗼𝗻.’
The sadness never left, and I don’t expect it to. But I’ve learned to make it a part of me. I like to think it’s Emma’s way of reminding me of all the joy, creativity, and love we shared in the few days we spent together every year for seven years.
I still went to work. I still went out with friends. I still laughed. And yet, the sadness remained—and 𝗜’𝗺 𝗼𝗸𝗮𝘆 𝘄𝗶𝘁𝗵 𝘁𝗵𝗮𝘁.
💙 𝗘𝗺𝗺𝗮’𝘀 𝗽𝗮𝗿𝗲𝗻𝘁𝘀 𝗮𝗿𝗲 𝘁𝘄𝗼 𝗼𝗳 𝗺𝘆 𝗯𝗲𝘀𝘁 𝗳𝗿𝗶𝗲𝗻𝗱𝘀. My husband and I have known them for more than two decades, sharing some of the most incredible experiences of our lives. Never could we have imagined we’d have to live this one, too.
I am in awe of their 𝘀𝘁𝗿𝗲𝗻𝗴𝘁𝗵 𝗮𝗻𝗱 𝘃𝘂𝗹𝗻𝗲𝗿𝗮𝗯𝗶𝗹𝗶𝘁𝘆 —how they showed up for Emma, for themselves, and for each other. Today, my heart is with them.
𝗧𝗵𝗶𝘀 𝗽𝗼𝘀𝘁 𝗶𝘀 𝗻𝗼𝘁 𝗷𝘂𝘀𝘁 𝗮𝗯𝗼𝘂𝘁 𝗴𝗿𝗶𝗲𝗳. 𝗜𝘁’𝘀 𝗮𝗯𝗼𝘂𝘁 𝗿𝗲𝗳𝗹𝗲𝗰𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝗮𝗰𝘁𝗶𝗼𝗻.
𝗥𝗲𝗳𝗹𝗲𝗰𝘁𝗶𝗼𝗻: If you’re grieving, know that it’s okay to take your time. To say, “𝗜’𝗺 𝗻𝗼𝘁 𝗼𝗸𝗮𝘆, 𝗯𝘂𝘁 𝗜 𝘄𝗶𝗹𝗹 𝗯𝗲.” To ask for what you need. The companies Emma’s parents and I worked for did something right—they gave us space, time, and support. I hope more organizations follow that example.
𝗔𝗰𝘁𝗶𝗼𝗻: DIPG is still 𝘀𝘁𝗲𝗮𝗹𝗶𝗻𝗴 𝗰𝗵𝗶𝗹𝗱𝗿𝗲𝗻’𝘀 𝗳𝘂𝘁𝘂𝗿𝗲𝘀. But there is hope. Research is ongoing, and we CAN be part of the solution. Get informed. Donate. Support the organizations fighting for a cure. Every step brings us closer.
💜 𝗜 𝗮𝗺 𝗮𝗻𝗱 𝘄𝗶𝗹𝗹 𝗳𝗼𝗿𝗲𝘃𝗲𝗿 𝗯𝗲 𝗽𝗮𝗿𝘁 𝗼𝗳 #𝗘𝗺𝗺𝗮𝘀𝗥𝗮𝗶𝗻𝗯𝗼𝘄𝗧𝗿𝗼𝗼𝗽.
This is my call to you—join the line, stand with us, and 𝗵𝗲𝗹𝗽 𝗮𝗱𝘃𝗮𝗻𝗰𝗲 𝘀𝗰𝗶𝗲𝗻𝗰𝗲 𝘁𝗼 #𝗕𝗲𝗮𝘁𝗗𝗜𝗣𝗚.
#ChildhoodCancer #DIPGAwareness #BeatCancer
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